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*Formerly known as the pkDO Foundation

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Unite with us to ensure Generational Health and a PKD-Free Future

Polycystic Kidney Disease (PKD) is a genetic condition that affects 600,000 people in the U.S. It is one of the leading causes of kidney failure. An affected parent has a 50% chance of passing it to their child. The PKD-Free Alliance (PKD-Free) supports proven methods for putting an end to PKD.

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We have a mission to provide funding to families to ensure a PKD-free future for generations.

Patty's Story: How Her Family Ended PKD

Living with Polycystic Kidney Disease had a big impact on Patty's life and her daughter's life too. Fortunately they found a solution to end it before it affected her granddaughter Juliana. Learn how they did it with support from PKD-Free Alliance, and how you can too.

Ending PKD in Your Family

PKD-Free is uniting families, the medical community and organizations to provide information and the necessary resources, including grants for IVF and preimplantation genetic testing (PGT). We are committed to ensuring that PKD is not passed down to future generations. With proven methods, we will change the odds from 50% to 0%. Join us and learn more about how you can end PKD in your family.

PKD-Free News: PKD-Free Spokesmon Natasha Rogina was a guest on the Santa Barbara Nutrients Radio Show and Podcast. She shared important information about how families can have PKD-Free Children and PKD-Free’s grant programs.

“I didn’t want her to have to go through what he did.”

Callie and Marcus Payne talk about the steps they took to ensure their soon-to-be-born daughter will be free from Polycystic Kidney Disease (PKD) including IVF and genetic testing. As a dad-to-be with PKD, Marcus knew there was a 50% of passing it onto his child.  He and Callie were determined to stop PKD in their generation. 

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Read About Affected Families

The Kellner Family

When we discovered my wife Jo had PKD, we were told there was nothing to do until her kidneys failed.

The Cavallaro Family

My family first discovered PKD more than 30 years ago, with my dad Phil Cavallaro.

The Meyer Family

My wife and I successfully went through the process of PGT (Preimplantation Genetic Testing) and with a team of wonderful doctors we have our amazing son who is PKD free.

PKD-Free News & Events

  • Reduce the Risk of Passing on Polycystic Kidney Disease (PKD)

    - In the News

    Read Now
  • Screenshot of a news article from USA TODAY about Utah Jazz's NBA General Manager, Justin Zanik, who received a kidney transplant from a living donor a year ago, featuring a photo of team officials at a game.

    NBA GM is savoring life one year after kidney transplant from living donor

    - In the News

    Read Now
  • Headline about Utah Jazz general manager Justin Zanik reflecting on his kidney transplant, with a photo of Justin Zanik smiling and wearing glasses at a press conference.

    "I Get up Every Day Feeling Grateful" Utah Jazz GM Justin Zanik Reflects on Kidney Transplant

    - In the News

    Read Now
  • Split-screen image of two women in a virtual interview. The woman on the left holds a card with 'The Donna Drake Show' text, while the woman on the right appears to be speaking enthusiastically. The background on the left includes a brick wall and a trophy.

    Natasha Rogina Chief Spokes-Mom Appeared on the Donna Drake Show

    - In the News

    Watch Now
  • Smiling man with a beard and dark hair, wearing a dark jacket in an indoor setting.

    LI group helps prevent genetic kidney disease from reaching next generation

    - In the News

    Read Now
  • Job posting ad for Chief Implementation and Operations Officer in the PKD-Free Alliance. Includes a family photo with two women and a baby, set outdoors. Background features a nature setting.

    Leadership Opportunity with PKD-Free

    - Chief Innovation & Operations Officer (CIOO) - Remote

    Learn More
  • News anchors at a studio desk with "News 10 ABC" sign in background, two women engaged in conversation, each with a tablet.

    PKD-Free Family on ABC News10 Albany

    – In the News

    Watch Now
  • Webinar banner titled 'Building a PKD-Free Future' for Kidney Awareness Month, featuring logos of pkDO (Polycystic Kidney Disease Outreach) and Columbia.

    New! PKD-Free and Columbia University Fertility Center: Building a PKD-Free Future

    – Webinar

    Learn More
  • Doctors in surgical attire discussing a "PKD Free Babies Initiative" to stop genetic kidney disease, as shown on Fox 13 News, Utah.

    Fox13 in Salt Lake City UT Reports on PKD-Free's Local PKD-Free Babies Initiative

    - In the News

    Click Here
  • Man smiling, wearing a dark sweater and collared shirt. Background is blurred.

    LI group helps prevent genetic kidney disease from reaching next generation

    - In The News

    Read Now
  • Woman in a blue dress giving a presentation on "Living with PKD: Diet and Nutrition is the Key" with bookshelves and framed certificates in the background.

    Living with PKD: Diet and Nutrition is the Key

    -In The News

    Watch Now
  • A man in a light-colored shirt stands at a microphone, with text that reads "SPEAK" and "Richard Kellner" on a blue background, and a subtitle "Resilience – Transforming Loss into Legacy."

    From Heartache to Hope

    – In The News

    Watch Now
  • A baby dressed in a blue outfit lies on a colorful crocheted blanket inside a crib. A teddy bear and a felt letter board with the message "YOU PKD OUTREACH" are positioned near the baby.

    PKD-Free’s ‘100 PKD-Free Babies’ Program Sees First Successful Births

    – In The News

    Learn More

Follow PKD-Free Alliance on Instagram

Erick Zumwalt has spent his career building from the ground up — from managing complex construction projects to structuring creative investments. But his proudest creation yet? His son, Eiden. "Beyond the business, I’m a dedicated h
The PKD-Free Alliance team welcomes Kevin Schnurr as our first Chief Implementation and Operations Officer (CIOO). With more than a decade of experience in nonprofit leadership, patient engagement, and rare disease advocacy, Kevin’s expertise w
Celebrating Motherhood & PKD-Free Futures Motherhood is a journey filled with love, strength, and hope—especially for those working to ensure their children live free from polycystic kidney disease (PKD). Abby Giller and her daughter, Flo
Hope for Families with PKD If you or a loved one has Polycystic Kidney Disease (PKD), there is something you can do. First Time Parent Magazine recently featured an article by PKD-Free Alliance founder Richard Kellner detailing how families impacte
Recently, Justin Zanik, the general manager for the Utah Jazz, marked the one-year anniversary of his successful kidney transplant. Since last year, Justin and his wife, Gina, have become strong advocates for the PKD-Free Alliance. Justin recently me
The message is clear: there is something that you can do if you have Polycystic Kidney Disease (PKD). Recently, First Time Parent Magazine published an article by PKD-Free Alliance founder Richard Kellner explaining what impacted families need to kno