*Formally known as the pkDO Foundation
Unite with us to ensure Generational Health and a PKD-Free Future
Polycystic Kidney Disease (PKD) is a genetic condition that affects 600,000 people in the U.S. It is one of the leading causes of kidney failure. An affected parent has a 50% chance of passing it to their child. The PKD-Free Alliance (PKD-Free) supports proven methods for putting an end to PKD.
We have a mission to provide IVF funding to families to ensure a PKD-free future for generations.
Featured Story
Utah Jazz General Manager Justin Zanik Shared his support for the PKD alliance
Justin Zanik, the General Manager for the NBA’s Utah Jazz, recently shared comments about his personal journey with Polycystic Kidney Disease (PKD) and his strong support for the mission of the PKD-Free Alliance.
Ending PKD in Your Family
PKD-Free is uniting families, the medical community and organizations to provide information and the necessary resources, including grants for IVF and preimplantation genetic testing (PGT). We are committed to ensuring that PKD is not passed down to future generations. With proven methods, we will change the odds from 50% to 0%. Join us and learn more about how you can end PKD in your family.
PKD-Free News: PKD-Free Spokesmon Natasha Rogina was a guest on the Santa Barbara Nutrients Radio Show and Podcast. She shared important information about how families can have PKD-Free Children and PKD-Free’s grant programs.
The Kellner Family
When we discovered my wife Jo had PKD, we were told there was nothing to do until her kidneys failed.
The Cavallaro Family
My family first discovered PKD more than 30 years ago, with my dad Phil Cavallaro.
The Meyer Family
My wife and I successfully went through the process of PGT (Preimplantation Genetic Testing) and with a team of wonderful doctors we have our amazing son who is PKD free.
Molly and Kristi
I call it a miracle that I am healthy today since I came close to needing dialysis.
The Patterson Family
On Halloween 2019 I received the call of a lifetime. It was my transplant coordinator from University of Utah telling me I was going to finally get a transplant from an anonymous donor named Sheryce.
Amy Leininger
I learned about my recipient’s kidney disease via Instagram and saw she was in serious need of a kidney donor.
Tim Francis
I was 24 years old when I found out I had Polycystic Kidney Disease. I went to the radiologist for a lump on my chest. As we were looking at the scans the radiologist said, “Can I show you something?
Scott MacLean
My father, my brother, and I all have Polycystic Kidney Disease. When I was diagnosed, I was told I had 5 years until I’d reach end stage kidney failure.
PKD-Free News & Events
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![Two women in a split-screen video call. The woman on the left is holding a card with "The Donna Drake Show" written on it, while the woman on the right is speaking. The background features a brick wall and a trophy.]()
Natasha Rogina Chief Spokes-Mom Appeared on the Donna Drake Show
- In the News
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![Man smiling, wearing a dark jacket, indoor setting.]()
LI group helps prevent genetic kidney disease from reaching next generation
- In the News
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![Job posting for Chief Implementation and Operations Officer at PKD-Free Alliance, featuring a logo with overlapping hands and a photo of two women holding a baby outdoors.]()
Leadership Opportunity with PKD-Free
- Chief Innovation & Operations Officer (CIOO) - Remote
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![Two female news anchors at a News 10 ABC studio, sitting at a desk with tablets, smiling and talking, with the News 10 ABC logo in the background.]()
PKD-Free Family on ABC News10 Albany
– In the News
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![Graphic with text "Building a PKD-Free Future", "Webinar for Kidney Awareness Month", with logos for PKD Outreach and Columbia University.]()
New! PKD-Free and Columbia University Fertility Center: Building a PKD-Free Future
– Webinar
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![Medical professionals wearing surgical masks and scrubs in a hospital setting. The image is from a news segment on FOX 13 News in Utah about the "PKD Free Babies Initiative," focused on stopping genetic kidney disease in babies. The bottom of the image includes a weather forecast and time.]()
Fox13 in Salt Lake City UT Reports on PKD-Free's Local PKD-Free Babies Initiative
- In the News
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![Smiling man with a beard wearing a dark jacket and shirt indoors.]()
LI group helps prevent genetic kidney disease from reaching next generation
- In The News
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![Woman in blue top speaking in a video about PKD diet and nutrition, with bookshelf and frames in the background.]()
Living with PKD: Diet and Nutrition is the Key
-In The News
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![A man in a polo shirt speaking into a microphone with text overlay: "SPEAK Richard Kellner Resilience - Transforming Loss into Legacy" on a blue background.]()
From Heartache to Hope
– In The News
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![Baby in blue outfit lying in a crib with a crochet blanket and a message board reading "Thank you PKD Outreach." A stuffed toy is placed next to the board.]()
PKD-Free’s ‘100 PKD-Free Babies’ Program Sees First Successful Births
– In The News
