*Formally known as the pkDO Foundation
Unite with us to ensure Generational Health and a PKD-Free Future
Polycystic Kidney Disease (PKD) is a genetic condition that affects 600,000 people in the U.S. It is one of the leading causes of kidney failure. An affected parent has a 50% chance of passing it to their child. The PKD-Free Alliance (PKD-Free) supports proven methods for putting an end to PKD.
We have a mission to provide IVF funding to families to ensure a PKD-free future for generations.
Ending PKD in Your Family
PKD-Free is uniting families, the medical community and organizations to provide information and the necessary resources, including grants for IVF and preimplantation genetic testing (PGT). We are committed to ensuring that PKD is not passed down to future generations. With proven methods, we will change the odds from 50% to 0%. Join us and learn more about how you can end PKD in your family.
The Kellner Family StoryWhen we discovered my wife Jo had PKD, we were told there was nothing to do until her kidneys failed. When that happened in 2014, I was fortunate to be a match and didn’t hesitate to donate my kidney to her. We had seven great years before Jo needed another transplant. At that point, our children and other family members had been diagnosed with PKD, and we went looking for more solutions.Our Story
The Cavallaro Family StoryThe Cavallaro family was first introduced to Polycystic Kidney Disease (“PKD”) about 30 years ago. Since then, three of his five brothers have also been diagnosed and are fighting PKD. In 2014 my mother Rose also died from kidney failure. This family knows all too well about the struggles of needing a kidney transplant and the importance of putting an end to this awful disease that causes pain, suffering and death. Our Story
Molly and Kristi’s StoryI call it a miracle that I am healthy today since I came close to needing dialysis. PKD runs in my family and my mother had it as well as my brother and sister. At least 12 potential donors got tested, including my best high school friend who underwent testing to find out she was a match, but ultimately medical complications prevented her from being able to donate her kidney to me.Our Story
The Patterson Family StoryOn Halloween 2019 I received the call of a lifetime. It was my transplant coordinator from University of Utah telling me I was going to finally get a transplant from an anonymous donor named Sheryce. I relentlessly had been asking my closest acquaintances for past 3 months if they would consider donating a kidney to me and it seemed hopeless. I am the first person in my family to be diagnosed with PKD.Our Story
Amy Leininger’s StoryI learned about my recipient’s kidney disease via Instagram and saw she was in serious need of a kidney donor. My heart immediately told me I was going to help my friend who is someone that I truly respect for her bravery and courage. My Story
Tim Francis’ StoryI was 24 years old when I found out I had Polycystic Kidney Disease. I went to the radiologist for a lump on my chest. As we were looking at the scans the radiologist said, “Can I show you something?” My Story
Scott MacLean’s StoryMy father, my brother, and I all have Polycystic Kidney Disease. When I was diagnosed, I was told I had 5 years until I’d reach end stage kidney failure. My Story
PKD-Free News & Events
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LI group helps prevent genetic kidney disease from reaching next generation
- In The News
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Living with PKD: Diet and Nutrition is the Key
-In The News
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From Heartache to Hope
– In The News
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PKD-Free Family on ABC News10 Albany
– In the News
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New! PKD-Free and Columbia University Fertility Center: Building a PKD-Free Future
– Webinar
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Fox13 in Salt Lake City UT Reports on PKD-Free's Local PKD-Free Babies Initiative
- In the News
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PKD-Free’s ‘100 PKD-Free Babies’ Program Sees First Successful Births
– In The News