What is Polycystic Kidney Disease (“PKD”)?
PKD is a genetic condition that results in cysts on the kidneys with a 50% chance of being passed on to children. As the cysts grow, normal kidney function is impacted and often results in kidney failure by the time the patient is in their late 40’s or 50’s.”
PKD is the fourth leading cause of Kidney failure in the US, impacting an estimated 600,000 Americans with ~70% of the cases undiagnosed until it is too late.
PKD-Free provides families with a history of PKD with information and resources to end the disease in their families. We offer programs and information for families explaining how PGT-M and IVF are used to prevent PKD being passed to future generations. For qualified families that need financial assistance we offer direct grants and we provide access to our IVF and other partners who offer discounts for services. We are committed to removing financial barriers for families that want to have PKD free children.
The Kellner Family
When we discovered my wife Jo had PKD, we were told there was nothing to do until her kidneys failed.
The Cavallaro Family
My family first discovered PKD more than 30 years ago, with my dad Phil Cavallaro.
The Meyer Family
My wife and I successfully went through the process of PGT (Preimplantation Genetic Testing) and with a team of wonderful doctors we have our amazing son who is PKD free.
Molly and Kristi
I call it a miracle that I am healthy today since I came close to needing dialysis.
The Patterson Family
On Halloween 2019 I received the call of a lifetime. It was my transplant coordinator from University of Utah telling me I was going to finally get a transplant from an anonymous donor named Sheryce.
Amy Leininger
I learned about my recipient’s kidney disease via Instagram and saw she was in serious need of a kidney donor.
Tim Francis
I was 24 years old when I found out I had Polycystic Kidney Disease. I went to the radiologist for a lump on my chest. As we were looking at the scans the radiologist said, “Can I show you something?
Scott MacLean
My father, my brother, and I all have Polycystic Kidney Disease. When I was diagnosed, I was told I had 5 years until I’d reach end stage kidney failure.
Ending PKD in Your Family
PKD-Free is uniting families, the medical community and organizations to provide information and the necessary resources, including grants for IVF and preimplantation genetic testing (PGT). We are committed to ensuring that PKD is not passed down to future generations. With proven methods, we will change the odds from 50% to 0%. Join us and learn more about how you can end PKD in your family.
Donate Now to Support Families Fighting PKD
PKD-Free is honored to work with medical specialists, advocates and families who embrace our mission of enhancing generational health by ensuring a PKD-free future. Please consider donating to help us support families and achieve our goal.